ARNOLD - Australasian Registry Network for Orphan Lung Disease

Australasian Registry Network for Orphan Lung Disease

WHO WE ARE

ARNOLD Committee:

Paediatric Respiratory Medicine

  • Dr Adam Jaffe (representing The Australian Lung Foundation's Pulmonary Interstitial Vascular Organisational Taskforce (PIVOT))
  • Dr Jacob Twiss (representing the Paediatric Respiratory Medicine Group of TSANZ and New Zealand)

Adult Respiratory Medicine

  • Dr Ian Glaspole (representing The Australian Lung Foundation's Pulmonary Interstitial Vascular Organisational Taskforce (PIVOT))
  • Dr Dan Chambers (representing TSANZ)
  • Dr Margaret Wilsher (representing TSANZ and New Zealand)

 

Registry Developer: Mr Aidan Laverty

 

 

Orphan lung diseases

Congenital malformations
Grown up (>16 years) chronic neonatal lung disease
Lymphangioleiomyomatosis
Alveolar haemorrhage syndrome
Langerhans cell histiocytosis
Pulmonary vasculitides
  • Wegeners granulomatosis
  • Churg-Strauss vasculitis
  • Other vasculitides incl. microscopic polyangiitis