Australasian Registry Network for Orphan Lung Disease
Links
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Uk National charity supporting all young people up to the age of 21 years who are either ventilated or technology dependent for over three months. |
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a support group for sufferers of Obliterative Bronchiolitis |
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For families with disabled children |
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(RCPCH) |
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Parental support group in USA for Interstitial Lung Disease |
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Chat room for parents with Interstitial Lung Disease |
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USA site for children with Lymphangiectasia |
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Pulmonary Hypertension |
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